Mindfulness and MS

 Mindfulness and MS

What if I told you that you can help your quality of life and improve your Multiple Sclerosis by practicing Mindfulness? Would you even know what that means?

What is Mindfulness?

Definition of  mind·ful·ness: 

1. The quality or state of being conscious or aware of something.

2. A mental state achieved by focusing one’s awareness on the present moment, while calmly acknowledging and accepting one’s feelings, thoughts, and bodily sensations, used as a therapeutic technique.

Can mindfulness help us on our journey with MS?

MindfulnessMindfulness was something first introduced to me while I was studying under my mentor, New York Times Best Selling Author, America’s #1 Success Coach, Jack Canfield. He taught me how to live my life with purpose, passion, clarity and to be mindful of everything around me. It was life changing for me and my journey with MS.

When I was studying personal growth/leadership development I wasn’t doing it hoping to find a way to help my MS. I was doing it for my own growth.  At that time I didn’t understand the concept that the mind, body, and spirit are connected and if we want to heal our bodies from MS, we must focus on each of those areas to be successful. I started to wonder if mindfulness could help others in their journey with MS, too.

Why is mindfulness important in our journey with MS?

Many people with MS suffer from depression, fear, anxiety, insomnia, pain, and overwhelming stress. Each of these issues can be devastating to our health.

For years I’ve been searching for alternative ways for us to deal with each of those issues. When I say “alternatives,” I mean alternatives to drug therapy, which is what most MS Dr’s present to us immediately. It can end up meaning a medicine cabinet full of prescriptions that can actually make things worse.

Hmm. When I think about this, it makes me think about daily life.  Do we just go through the motions? You know, everything is pretty much on auto pilot, isn’t it? We all have our routines with our families, with our jobs, with ourselves – things are just done out of habit. Can we be mindful every day?  The answer is a resounding, YES!

Are there different ways to practice mindfulness?

1 – Being mindful – Going through your everyday functions and being present, engaged, aware and calm.

When I practice mindfulness throughout the day, it means being aware and grateful for everything – The sun, the rain, family, friends, my dogs, good things that happened in my day and even the challenges, too. It’s all about having the right perspective in any given situation good or bad and responding in a healthy, more positive way. I also do affirmations and journaling which keeps me focused on thinking the right way, which is so important, not only for all of us living with MS, but just in daily life.

2 – Mindful meditation – Meditation where you can focus on areas of the body in pain and releasing or separating yourself from that pain. You can focus on specific parts of the body and visualize it’s repair and healing (I have several MS friends that visualize their Myelin being restored over nerve endings throughout their body or picturing their MRI’s with less lesions). It can also be something as simple as deep breathing and just being in that moment of meditation.

MindfulnessThe great thing about being mindful and mindfulness meditation is that everyone can do it and it can have lasting health benefits to us. In studies people that practiced mindfulness had an improved quality of life, and more positive and hopeful expectations.  It also took away pain, stress, anxiety, depression and fear. Some hospitals now prescribe mindfulness meditation for patients dealing with pain. Check out MS & The Mind to learn more about its affects on our MS.

When you learn to practice mindfulness, you will have better coping strategies in stressful situations. We know stress can cause us to have an exacerbation or even cause new lesions, so we must do everything to ensure we are living stress free as much as possible.

Remember, our mind, body, and spirits are connected and we must focus on each area for healing.  Mindfulness can be a very powerful way to start on our journey to health and healing!

For inspiration and great ideas on healthy living with MS, check out my new book “Waking Up From MS – My Journey to Health, Healing, and Living Symptom Free”  – It explores my almost 30 year journey living with MS and how I am now living symptom free, healthy, and thriving. On FB check out my MS Free For All page.

To our health!

Kellie Alderton

 

To learn more about healthy products and green technologies for your healthy lifestyle check out my business page –  Healthy Solutions, Inc 

Acupuncture and Multiple Sclerosis

Acupuncture and MS

In my new book “Waking Up From MS – My Journey to Health, Healing, and Living Symptom Free” I focus on treating the body as a whole and the mind, body, spirit connection to healing. I have a chapter dedicated to “Creating the Best Body” while living with MS. I believe acupuncture is an important part of that process.

The MS Society describes acupuncture as one form of traditional Chinese medicine. It’s based on a theory about body functioning that involves the flow of energy known as qi (“chee”) through fourteen pathways called meridians throughout the body. Acupuncture involves stimulating specific locations on the skin, usually by inserting thin, disposable metallic needles into points along the meridians in the body in order to alter the flow of energy. According to the theories of Chinese medicine, disease results from an imbalance or disruption in the flow of energy between the opposing forces of yin and yang.

I looked into acupuncture while I was receiving chiropractic care, and I learned that acupuncture can stimulate and balance the body and immune system.

Acupuncture is considered an alternative therapy for dealing with MS

Now, I do need to state that all of my MS doctors told me to avoid chiropractic care, acupuncture, and even supplements; they said they would stimulate my immune system. I asked the doctors – How can I ever be healthy if I’m constantly suppressing my immune system, which is the theory behind traditional MS protocols? They had no answer. If I had followed their protocols, I would still be sick, having frequent relapses.

When you look at the human body certain things make sense. Doing everything to repair the immune system is what I started to focus on. I’ve always believed that once your immune system is healthy and functioning properly, it’s healed, and I could be healed too.

According to the National MS Society, many MS sufferers use acupuncture for the relief of pain, muscle spasms, numbness, tingling, fatigue, depression, anxiety, and bowel and bladder symptoms. It can also help regulate our immune system, provide mental clarity, stress release, and improve our overall quality of life.

Some people may notice immediate, positive results from acupuncture while others may notice symptoms or issues worsen a bit after, this means for some people that your body is going into “healing mode” and things may get a bit worse before they get better. I believe it’s important to stay consistent with all treatments and things will most likely subside. Now, I know in my own experience that the times I felt a little pain was when I was having the most health challenges.

The benefits you can receive from acupuncture are amazing, and that is the one thing I turned to in the beginning of my journey to start the process of healing.  I did acupuncture for many years to help my body get into alignment and in sync, and I use it today to keep my body that way. I believe acupuncture helps our mind, body, and spirit through each course of treatment and I believe it was a catalyst in me now living symptom free.

Acupuncture can relieve many of our MS symptoms

In studies, scalp acupuncture was used on MS patients suffering from: stabbing and burning pains, paralysis, dizziness and vertigo. The Southwest Rehabilitation Hospital and National Healthcare Center in Albuquerque, N.M.* did a study that used scalp acupuncture on 16 patients with limb pain. After only one treatment per patient, eight of the 16 patients instantly showed significant improvement (49 percent), six patients showed some improvement (38 percent), and only two patients showed no improvement (13 percent), thus yielding a total efficacy rate of 87 percent.

There are many different ways to use acupuncture to treat MS.  I’ve used acupuncture in my scalp and throughout the body. As I’ve been dealing with my MS now for almost 30 years, I have really focused on many different holistic and alternative therapies to aid in my healing. Just as one thing didn’t give us MS, there won’t be one specific thing that heals us.  My mantra – “A Healthy Immune System equals A Healthy Body.” So we need to do everything possible to help facilitate a healthy, properly functioning immune system. You can check out more information on health and healing under my MS Resources and Links.

We know acupuncture is an important part of our healing and I believe it is something you should thoroughly investigate.

I would love to hear your own stories about using acupuncture.

To our health!

Kellie Alderton  

 

You can learn all about my MS story and the reason I started this blog.

 (*http://www.acupuncturetoday.com/mpacms/at/article.php?id=31710)

Benefits Of Holistic Dentistry

Holistic/Biological Dentistry

Have you looked into holistic dentistry as part of your healthy lifestyle? I don’t know if you’re like me, but after living with Multiple Sclerosis for almost 3 decades, I decided that I must, not only figure out this disease, but I must learn, study, and investigate every possible facet to healthy living and MS.

I never knew about holistic/biological dentistry and how it focuses on natural and organic ways to deal with the health of your teeth, mouth, and body. I’ve consistently had challenges with my teeth since I was a teenager. In fact, my dentist at the time was obsessed with ROOT CANALS. (Yes, obsessed.)  And we now understand the science behind root canals and that it could negatively affect our overall oral and physical well-being. Some doctors, dentists, and scientists think it’s almost a guarantee of some type of illness or disease – so it’s worth investigating. Now, when I say my Dentist was “obsessed,” I’ll explain. My sister and I were each given 4 root canals.  As many of you know from my blog and my newly published book “Waking Up From MS – My Journey to Health, Healing and Living Symptom Free”, that both myself and my twin sister Kim were diagnosed as teenagers with Relapsing Remitting Multiple Sclerosis.  And we wondered if those procedures could have been a part of our long history with MS? You can learn more about my sister and me in MS and the Mind.

Holistic Dentistry and Healthy 

Living go hand in hand! 

My best friend told me about a wonderful, local, holistic dentist. Since I was focusing now solely on holistic and alternative therapies to heal, I went with an open mind and literally an open mouth. We now understand the direct correlation with oral health and lifelong health. Many diseases and illnesses can start in the mouth.

holisitic dentistry

 

Benefits of Holistic Dentistry:

– They take a Whole Body approach to our care, it’s not solely focused on our teeth. They focus on the mind, body and spirit. (Wow, I’ve preached for years how we must focus on a whole body approach to healing our MS.)

– They understand that each tooth is related to an acupuncture meridian that directly relates to various organs, glands and systems in our body. An experienced dentist can assess your overall health by studying your tooth health.

– They use materials that are bio-compatible to your body. (I had biocompatibility testing done to ensure I wasn’t allergic or had sensitivities to any of the products the dentist would be using on me.) After that testing we learned that most of the things in my mouth through previous dental procedures I was allergic or sensitive too. That was an eye-opener!

– Holistic dentists believe in doing everything possible to support the body’s natural ability to heal itself. (Again, this was another point I have always believed. That every “body” can be healthy if you give it the right tools to do so.)

– They believe in natural or holistic solutions for things like Root Canals.

– They don’t use Fluoride, ever. Which is a known carcinogen and neurotoxin.

I highly recommend going to a holistic dentist as soon as possible, check it out and see if you think it will be a benefit to you and your family. Simply Google “holistic/biological dentistry” in your area. Checkout my MS Resources & Links page for further information about different providers. Remember, in this journey with MS we must look at many different areas for our healing. One thing didn’t give us MS, and it won’t be one single thing to heal. It’s important to focus on a whole body approach – mind, body, and spirit.

 

To our Health!

Kellie ♥

If you’re interested in understanding more about MS and how to heal naturally, check out my book – “Waking Up From MS – My Journey To Health, Healing and Living Symptom Free.

Why you should start Dry Body Brushing now!

dry brushing

Dry Body Brushing has many health benefits.

While living with Multiple Sclerosis, it’s important to have a daily focus on lessening inflammation in our bodies. I highly recommend becoming your best health advocate and learn everything possible about your MS. Understand the need to thoroughly investigate many different avenues for your own healing. In my own journey of living with MS I’ve found many different alternative and holistic therapies that aided in my health and healing. My mantra is: “A Healthy Immune System equals A Healthy Body” and dry brushing is a way to help your immune system.

Dry Brushing is AMAZING! I started dry brushing a few years ago while investigating ways to lessen inflammation in my body. It is one of the things I thoroughly enjoy doing, it’s simple and easy to do and you will notice results right away. The big joke in our family is that I say once we’re done dry brushing all of the cells in our body are singing! Ha! Ha! I know that’s a little corny, but it’s true! You will feel invigorated and definitely energized. It’s a great way to start the day.

Dry Brushing Benefits:

  • Stimulates lymphatic system
  • Eliminates toxins and bacteria
  • Exfoliates skin
  • Unclogs pores
  • Relieves Stress
  • Increases circulation
  • Younger looking skin
  • Improves digestion and kidney function
  • Reduces cellulite
  • Reduces muscle tension
  • Invigorates and energrizes
  • Strengthens Immune System

Choosing a Brush:

I am tall so I prefer to use a long handle brush so I can easily reach my back. You may prefer the smaller, hand-held brushes, for some it’s easier to control.  It’s best to use a brush with bristles made of natural materials that should be stiff but pliable.

How to Dry Brush:

  • I recommend dry brushing daily, in the morning, since this will definitely energize you! (Jump in the tub or shower – to keep the sloughed off skin cells contained). I also noticed even more benefit doing it before my workout.
  • Never shower before dry brushing, make sure your skin is completely dry.
  • Always begin with upward movements towards the heart which is best for your lymphatic system and for circulation. Begin brushing at the soles of the feet, next to the ankles, calves, legs, stomach, arms, (be careful around breast tissue) continue up to neck and then focus on the back. Always avoid the face and any areas that may be sensitive or have skin irritations.
  • Work in small, gentle, circular motions (always going up towards the heart) – brush firmly, but don’t scrape or scrub your skin.
  • Follow it up with a shower and you can even use a natural moisturizing oil or coconut oil (avoid baby oil).

I hope you can add Dry Brushing to your healthy lifestyle. You can also learn more tips and techniques about how I beat MS and now live symptom free in my new book – “Waking Up From MS – My Journey to Health, Healing, and Living Symptom Free.” I hope it can be a stepping stone of new ideas for you on your own MS journey.

 

To our Health!

Kellie Alderton

book cover 1

Multiple Sclerosis can be a scary and unpredictable journey.  There are many trials and tribulations for each of us affected with this disease. After living with MS for many years with little hope of being truly healthy, my eyes and mind were open to the possibility of a total transformation of not only my health, but in every way I thought about MS.

It’s with excitement, gratitude and humility I am happy to announce that my book “Waking Up from MS – My Journey to Health, Healing and Living Symptom Free” is finally available on Amazon.

This book details my almost 30 year journey with Multiple Sclerosis from my diagnosis at the age of 17 to now living symptom free at the age of 46.

This is more than a book about MS, it’s a book about how the mind, body, and spirit are connected and how we must focus on each area if we want to be truly healthy, whether you are living with a condition like MS or not.

My book covers holistic and alternative therapies that I used every day to heal my body. I want my book to take you on your own journey. I want it to be thought provoking and inspiring for everyone who reads it.

Please share with your MS family and friends or their caretakers!  

To our health!

Kellie Alderton 

#wakingupfromms

 

 

My MS Story….

My Multiple Sclerosis Story…

The Reason Behind “MS FREE For ALL”

my ms storyI was diagnosed with RRMS at 17 years old when I was a senior in high school. I had Optic Neuritis, loss of balance, pain and numbness in my limbs and extreme fatigue. Back then we really knew nothing about MS. I was told by my pediatric neurologist that there would be a cure in 5 years. Yes, he said 5 years! Well, I’m now almost 43 years old and I believe we’re no closer to a cure today as we were back then. I know that is not going to be a very popular statement, but it’s what I believe!  I am healthy and strong right now not because of anything the medical community did for me, but by taking charge of my health, seeking out people, ideas, healthy products and acquiring knowledge of alternatives to stay healthy and not let Multiple Sclerosis control my life.

I want this blog to be a resource for all my MS friends, their family members, or anyone interested in learning more about Multiple Sclerosis or dealing with autoimmune issues. I wasn’t always an advocate for MS, in fact, at times over these past 25 years I’ve felt so out of control with this disease!!!  I feel now after dealing with MS all these years and being in a healthy state of mind, with a healthy lifestyle and a good support group around me, I am hoping to help others. I have been on a journey to learn more about this disease, how we can live with it, treat it, and finally beat it once and for all.

My MS Story Will Provoke….

I know there may be naysayers that will say I’m foolish for thinking we can be healthy and strong with MS. I believe that I have been given this disease and brought along on this journey (and it has been one heck of a journey) to share the things I am going to share with you!

My MS Story Has A Purpose…

I’m not a physician. I’m a human being who has dealt with Multiple Sclerosis and has said there must be a “BETTER WAY.” That there is much more to this disease and recovery than what is standard M.S. protocol.

My heart truly hurts for others that are hurting from MS, to their loved ones, and to those that are taking care of them; as I know the struggles you are having, the ups and downs, trials and errors, the pain and the strength we all must have to endure this disease. My hope is to unite the MS community in an attempt to share knowledge, ideas, and a world MS FREE for ALL!

Please enjoy this information and share! I look forward to your feedback!

To our Health!

Kellie

Extreme Temperatures and M.S.

cold weather BABY, It’s Cold Outside!!!!

It’s very interesting and ironic. As I sit here today finishing this article, I started to feel my fingertips and nose getting colder! So I walked to my closet and put on my husbands big Flannel hoping that would help. Well, no luck, turns out the heat is out!!! Waiting right now on the repairman and thinking how funny life can be as it looks like I’ll be taking my own advice today for staying warm!

Can any extreme temperatures cause an MS flare-up? I’m not sure where you’re located, but we’re now in full winter mode in Chicago. That means hat, gloves, scarves, ear muffs, snow pants, boots, you know, anything to beat the extreme cold. “BRRRR” seems to be my go-to word for the past few months and for anyone that knows me, Yes, comparisons of Chicago and Antarctica are definitely on my mind!  

Were you one of the millions of MS sufferers who were counting down the days for cooler weather?  Me too! Yes, heat and humidity can be very disruptive and cause minor, temporary flare-ups of our MS symptoms during the summer months, but did you know some people also have challenges during the winter months? It’s less common, but still can affect those of us with MS?

Some people do report worsening of symptoms just as much in the coldest part of winter as they do in the hottest months of summer!  You might be wondering if we can use ice, cold showers, cold compresses or cooling vests to cool down during the summer, why would the cold negatively affect us now, why is this different? The truth is that any drastic changes in temperature either hot or cold can have an impact on us.

Things you may experience due to the Cold:      

  • Fatigue
  • Spasms
  • Joint and muscle pain
  • Muscle stiffness
  • Numbness and tingling

The good news is, just like in summer months, there are things we can do to protect ourselves against the cold.

warm-winter-drinks-alcohol-free-caffine-free-healthy-drink-recipes

Make sure your house is properly insulated, check around doors and windows for any pesky drafts, there are plenty of low cost ways to seal them.  While you’re in, you can use a heating pad, blankets, extra clothing. Some people find warm showers or baths may relieve some of the stiffness, aches and pains. (Be careful to not become overheated!) You can also warm up with a nice cup of soup, tea or coffee.   

If you have to be out in the elements, try layering clothing to keep heat from escaping, protect your head and use hand or feet warmers. Also be sure to use any walking devices or aides to help you outside when your muscles can become stiff or slow to respond. Just like the summer months it’s very important to stay hydrated, make sure to continue drinking enough water, people tend to think just because it’s cold outside you can’t become dehydrated. Dehydration can also cause or complicate many of the above symptoms.

 

As I’ve said before, our minds are extremely powerful and I’d like to say it’s as easy as thinking Warm thoughts of summer to beat the cold, but your best line of defense is to be prepared for the elements, listen to your body, and seek assistance if needed.  You can learn more about MS in All About MS and Resources to help you on your journey! Enjoy!

 

If you have found this article helpful please share. As always, I look forward to and appreciate your feedback!

To our Health!

Kellie

OH MS, It’s really getting HOT in Here!

Heat, Heat and even more Heat!

Anyone with Multiple Sclerosis that hears that single word could have a streak of fear go through them and images of terror from memories of summers long ago.  Many people talk about getting out there in the heat and getting baked to a crisp in the sun.  Us MSers however, have a very different stance on the heat!thermometer

In fact, many of us start in the winter months to prepare for the summer! Yep, you heard it, in the dead of winter we can start preparing for our upcoming summer and the next heat wave.  We focus on making sure the air conditioner is in tip top shape, all window treatments are giving maximum protection from the elements, getting cooling vests, head protection, traveling to a cooler climate and anything else we can get our hands on that promises us the chance of staying cool.

Yes, it’s that real and that serious!

I myself am very aware of the heat.  Living with MS now for over 25 years, my MS Story may not be different than anyone else as heat intolerance was always the one thing that seemed to get me. My head use to feel like it was baking…literally from the inside out. So I understand first hand why this is one topic that we need to not only prepare for, but share the info so others do not have to suffer!

Things you may experience when you are suffering from Heat exposure:

1 – Dizziness

2 – Immediate fatigue – (Almost as if someone burst your energy bubble)

3 – Blurred Vision

4 – Shakiness or Tremors

5 – Numbness and that awful tingling sensation in limbs

6 – Decrease in your cognitive function (You knew you were smarter before you got into that sun, sauna or hot bath)

The very interesting fact about the heat and your Multiple Sclerosis is that yes, it can cause us to have symptoms that either appear or start to get worse during heat exposure. It does not cause any long term inflammation or lesions as happens when we have an exacerbation. Which is great news, but still we need to think about ways to stay cool and get over the immediate effects from the heat.

 

Some ways to beat the heat:

1 – Always have air conditioning.

2 – Cooling Products – You can Google it there are dozens to choose from. There’s also things you can do too – soak a sponge in water, freeze and then put in a Ziploc freezer bag, this stays cool for a long time and is very inexpensive. Contact the MS society they have cooling programs in place too.

3 – Get into the swimming pool.

4 – Misting Fans.

5 – Stay hydrated by drinking cool beverages – of course water is the best option. This will actually go to your core and immediately go to work on lowering your overall temperature.

6 – Keep covered when in the sun. By wearing a hat during summer it gave me more time to be outside before the heat would start to affect me.

7 – Eat foods that are cool – fruits, veggies, salads. Healthy icees made from real food, not stuff packed with sugar (that can also cause fatigue)

8 – If exercising in the summer workout later in the evening or earlier in the morning – making sure to stay hydrated.free-winter-picture-icicles

 

I would like to say it’s as easy as thinking cool thoughts, but the best thing you can do to beat the heat is stay prepared at all times and really listen to your body! You can check out All About MS to learn more about this disease!

 

If you’ve found this article helpful please share! I look forward to your feedback!

We’re in this together! To Our Health!

 

Kellie

 

 

Is this the Multiple Sclerosis Miracle?

Vitamin D – Is it the Multiple Sclerosis Miracle?

Vitamin D may be one of the most important nutrients to heal our bodies, not just from auto immune issues like Multiple Sclerosis but even cancers. Vitamin D deficiencies run rampant now – especially in Americans. It’s interesting that Auto Immune diseases, illness and cancers do too. Vitamin D levels are steadily declining, specifically in the U.S., as children and adults spend less time outdoors.

 

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Studies conducted by researchers at the University of Oxford and another conducted at the New Jersey Medical School and even the Mayo Clinic have suggested that maintaining adequate levels of Vitamin D may have a protective effect and lower the risk of developing Multiple Sclerosis. Vitamin D may even lessen the frequency and severity of our MS Symptoms. When you’re having an exacerbation, your Vitamin D levels may be almost non-existent! Of course more research is needed to assess these findings, but I believe what’s been revealed is groundbreaking and as research continues around the world I grow more hopeful and optimistic each and every day about its benefits to the MS community! When Vitamin D levels are optimized it may help prevent many types of Cancers,  Cardiovascular Disease, Diabetes,  Osteoporosis, Infections, Rheumatoid Arthritis. Any doctor can order a Vitamin D level test and it’s important to find out where you are currently so that you have a reference point in tracking your levels. Screening for vitamin D deficiency is especially important for African-Americans and other ethnic groups with dark skin, due to the decreased natural production of Vitamin D from sun exposure.

 

The link between Vitamin D and MS is strengthened by the association between sunlight and the risk of MS. The farther away we are from the equator, the higher the risk of MS. Sunlight is the body’s most efficient source for Vitamin D. An effective way to get your D levels up is spending 10-15 minutes a day (mornings are best) in direct sunlight with the least amount of clothing on.  The more skin exposure the more D that is produced. Don’t worry about staying out longer thinking that you’ll get more D, that’s not how the body works.

 

Supplementing your Vitamin D is very important and can be a great benefit. The Mayo Clinic and even in Swedish studies they’ve shown that the recommended daily allowances are no where near the levels we need if we are to combat Multiple Sclerosis and other illnesses. I take 8000 IU’s a day of Vitamin D3 with K2. During the summer months I take 4000 IU’s. You can also do your own research at the Mayo Clinic website as they have an reference guide for Vitamin D dosing correlated to your specific disease or symptoms. (As always talk with your trusted health care provider before starting any type of supplement.)1537562-daily-vitamins-on-a-white-background-fill-the-shot

 

The more I research, the more amazed I become! This is just the tip of the iceberg as to how AWESOME Vitamin D is for our bodies, our immune systems, and especially our Multiple Sclerosis!

 

To Our Health!

Kellie

 

 If you like this story please share! Knowledge is power and we’re building a platform to an informed MS community!

 

 

Multiple Sclerosis is NOT a Death Sentence!

hopewithribbonMy heart is heavy today as I write my second official Blog post!  Sometimes It’s hard to decide what to write, I mean, I want to share so much information that I’ve learned over these last 25 years dealing with this disease from being a teenager, to an adult, to a parent living with this chronic condition, it’s clear now why I was waiting on what to write.

I received a text from one of my best friends yesterday, “I NEED TO TALK WITH YOU NOW”! My stomach dropped when I saw the text and I ran to find my headset and phone to call him back. He began to tell me of a young lady, a wife, a mom of 2 young children who was recently diagnosed with Multiple Sclerosis.   I was anxious to talk with her to offer some support and HOPE! I know how scary it is when you have Multiple Sclerosis, the uncertainty of the disease course, the uncertainty of the future and how it will affect not only you, but your family.

Unfortunately, this was not going to be that type of call – He told me that she had committed suicide. My heart sank, I couldn’t believe my ears. I said Oh, No, what happened? I learned she was experiencing terrible headaches, pain at the base of her neck, chronic fatigue and had Optic Neuritis. Wow, Those are the same things I was experiencing when I was diagnosed 25 years ago. She was told by a doctor that she would probably have only 4 years to live…..Obviously that was a ridiculous, inaccurate diagnosis, irresponsible and just plain inhumane.  I was told she was sitting at the computer investigating day and night about MS and was terrified by what she saw!

Please, Please, Please – know this – Multiple Sclerosis is not a death sentence. You can have a productive and good quality of life too. Yes, Multiple Sclerosis is a sporadic and ever changing disease, but there are plenty of options for all of us. We have the top minds in research, medicine and alternatives working for us for a cure! THERE IS HOPE! I honestly wish I could talk with each person suffering and struggling with MS. Maybe we can devise a plan of attack, maybe we could just chat, and maybe they would understand they are not alone.

I am thoroughly upset by what happened to this poor woman, what if I could have talked to her, what if we could have gotten her some professional mental help, what if we could have gotten her to a local support group or even in one of these amazing Facebook groups we are a part of?

 

If you know someone struggling right now or if you are that person – Please reach out to someone!  YOU are not Alone! There is HOPE!

 

Your life is important!

You are important!

Don’t let MS define you!

 

If you like this, please share! We’re in this together. To our health!

 

Kellie

 

National Suicide Prevention Lifeline – 1-800-273-8255

National Crisis Hotline – 1-800-784-2433

www.mssociety.org – 1-800-344-4867 – “Knowledge is power section”  for newly diagnosed MS sufferers

 

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