M.S. Myths Archives

Top MS Myths

Top Seven MS Myths

ms myths

MS Myths have the potential to completely derail someone by setting false expectations.  In my experience, the following are the most common MS myths that are being shared throughout our communities today.  If we are going to take charge of our health and our lives, it is important that we do not buy into these MS myths.  We must protect our thoughts and create our beliefs based on truth because the first step in recovering and living a healthy, productive life is believing in what is possible and not believing in ideas that will limit you.  MS Myths are simply someone else’s ideas, and certainly not factual.

I have personally been able to defy these common MS myths and so can you!

 

MS Myths #1 – YOU DON’T LOOK SICK:

If you look healthy on the outside, you walk normal, your skin looks normal, your face appears normal – some may think that you’re not sick and that you just complain all the time. Some may even think that you are faking symptoms for sympathy, or that you are lazy and seeking support! Not true. MS is notorious for wreaking havoc on the body all internally, starting from the top of your head to the tips of your toes – again, all unnoticeable on the outside, but all very apparent to the sufferer with MS…MS can be called the most silent or invisible disability because of this. With this common misconception, people are hurt over and over. The best we can do is share information so we can change this once and for all.

MS Myths #2 – YOU CAN DIE FROM MS:

Historically, people don’t die from MS. Most people with MS will live just as long as anybody else. Sometimes people who are very badly affected get more infections or pick up other illnesses more easily than healthy people because of their compromised immune systems, and they can die from these complications. What I’ve found to be an overriding factor is that some people can die from side effects of the DMD’s, but again, MS itself does not kill. I’ve known people who got MRSA and died while being hospitalized for MS treatment, does that mean they died from MS or did they die of MRSA? So the best advice I can give you is to understand you can live just as long as anyone else and start living your life. Focus on ways to heal and repair your body naturally.

MS Myths #3 – YOU SHOULDN’T HAVE CHILDREN:

A woman with MS is less likely to have a relapse during pregnancy, (I myself had some of my healthiest times while I was pregnant.) Although the risk of ms mythsrelapse does increase in the six months after the birth – usually due to the trauma of birth on your body. (I did have a relapse after my first child – loss of sensation and muscle control of my arms, and specifically my hands), but Pregnancy has no long-term effect on MS and you are no more likely to experience miscarriage, stillbirth, birth defects or infant death than anyone else.

It’s important to note that in my second pregnancy I was only using holistic and alternative therapies to heal and I was healthy and strong throughout the pregnancy, even after my sons birth – no relapse, symptoms, or any negative reaction from MS.

MS Myths #4 – YOU CANNOT WORK WITH MS:

MS is different for each person. Every person experiences different symptoms at different times and the impact of the symptoms on your working life will very much depend on the type of work, your condition and your own personal experience of MS. Some people might tell you to stop working right away upon your diagnosis, but I believe as long as you can work, if it’s not too stressful, you should continue. (You know the whole idea of a body in motion stays in motion!) Many people with MS never experience symptoms even severe enough to stop working.

MS Myths #5 – MS ISN’T A PHYSICALLY PAINFUL CONDITION:

MS patients do experience significant pain which may be acute or chronic at some point in the course of their disease. With the symptoms changing and varying so much from person to person, month to month, day today, it’s impossible to diagnosis or determine the levels of pain at any given time.

MS Myths #6 – I CAN’T EXERCISE WITH MS:

ms mythsExercise is helpful in managing many MS symptoms in addition to being essential to general health and well-being.  Patients who participate in an aerobic exercise program have better cardiovascular fitness, improved strength, better bladder and bowel function, less fatigue and depression, a more positive attitude, and increased participation in social activities. Many studies have confirmed the benefits of exercise. I myself have done many forms of exercise – lifting weights, Pilates, aerobic activity.

Inactivity in people with or without MS can result in numerous risk factors; it can lead to weakness of muscles, cardiovascular disease, decreased bone density with an increased risk of fractures, and shallow, inefficient breathing. You have to think about it again, as a body in motion stays in motion. When you slow down or are inactive it will greatly affect your health.

An exercise program needs to be appropriate to the capabilities and limitations of each person. You know your body and you should always pay attention to how you are feeling and what you are experiencing. Your activities may need to be adjusted as changes occur in your MS symptoms. Any person with MS who is initiating a new exercise program should also consult with his or her physician before starting.

And…last but not least….

MS Myths #7 – “WE” WILL HAVE A CURE IN 5 YEARS:

Although “WE” may be very hopeful that this will happen in our or my lifetime, that the medical community will come up with our cure.  I would say honestly, DON’T HOLD YOUR BREATH. (I was told in 1988) by my pediatric neurologist, “Don’t worry, Kellie, there will be a cure for MS in 5 years) Yes, back in 1988 – and I am asking everyone to think about this realistically, are we any closer to a cure now in 2018 as we were back then with traditional MS protocols?  Although this may be disheartening or not well received, my answer is a resounding “NO”!!! You can do your own research and I would love your feedback on this. What we do have is a plethora of disease-modifying drugs that can have worse side effects than MS, nothing given to us for healing or repair.

MS Myths #7 is exactly the reason we need to take 100% responsibility for our own health. I know when I decided to take this disease head-on and focus on holistic and alternative therapies to heal, it changed my life and the course of my disease forever. Now, I am healthy, strong and symptom-free. Please know there is HOPE for you!

If you want to learn about my almost 3o year journey living with and beating MS,- Check out my book “Waking Up From MS, My Journey to Health, Healing and Living Symptom Free.

 

To Our Health!

Kellie Alderton 

 

If you want to learn more about natural, healthy CBD products visit:  www.successwithnewyou.com 

If you want to learn about the BEST CBD products to help you on your own journey with MS visit: www.successwithnewyou.com 

You can also follow me on twitter @kelliealderton or my FB page Waking Up From MS where I share insights and information for everyone dealing with MS.

You can also listen to my radio show on http://msandme.airtime.pro – “Live in Hope, Focus on Healing” – every Sunday at 3:30pm, Est or on YouTube – http://bit.ly/2Fe0NuN

 

Multiple Sclerosis is NOT a Death Sentence!

hopewithribbonMy heart is heavy today as I write my second official Blog post!  Sometimes It’s hard to decide what to write, I mean, I want to share so much information that I’ve learned over these last 25 years dealing with this disease from being a teenager, to an adult, to a parent living with this chronic condition, it’s clear now why I was waiting on what to write.

I received a text from one of my best friends yesterday, “I NEED TO TALK WITH YOU NOW”! My stomach dropped when I saw the text and I ran to find my headset and phone to call him back. He began to tell me of a young lady, a wife, a mom of 2 young children who was recently diagnosed with Multiple Sclerosis.   I was anxious to talk with her to offer some support and HOPE! I know how scary it is when you have Multiple Sclerosis, the uncertainty of the disease course, the uncertainty of the future and how it will affect not only you, but your family.

Unfortunately, this was not going to be that type of call – He told me that she had committed suicide. My heart sank, I couldn’t believe my ears. I said Oh, No, what happened? I learned she was experiencing terrible headaches, pain at the base of her neck, chronic fatigue and had Optic Neuritis. Wow, Those are the same things I was experiencing when I was diagnosed 29 years ago. She was told by a doctor that she would probably have only 4 years to live…..Obviously, that was a ridiculous, inaccurate diagnosis, irresponsible and just plain inhumane.  I was told she was sitting at the computer investigating day and night about MS and was terrified by what she saw!

Please, Please, Please – know this – Multiple Sclerosis is not a death sentence. You can have a productive and good quality of life too. Yes, Multiple Sclerosis is a sporadic and ever changing disease, but there are plenty of options for all of us. We have the top minds in research, medicine, and alternatives working for us for a cure! THERE IS HOPE! I honestly wish I could talk with each person suffering and struggling with MS. Maybe we can devise a plan of attack, maybe we could just chat, and maybe they would understand they are not alone.

I am thoroughly upset by what happened to this poor woman, what if I could have talked to her, what if we could have gotten her some professional mental help, what if we could have gotten her to a local support group or even in one of these amazing Facebook groups we are a part of?

If you’re looking for more holistic and natural ways to beat your MS, you’ll want to check out my book “Waking Up From MS – My Journey to Health, Healing, and Living Symptom-Free.” It details my almost 30-year journey with MS and how I am now healthy, strong and symptom-free!

 

 

If you know someone struggling right now or if you are that person – Please reach out to someone!  YOU are not Alone! There is HOPE!

 

Your life is important!  You are important! Don’t let MS define you!

 

National Suicide Prevention Lifeline – 1-800-273-8255

National Crisis Hotline – 1-800-784-2433

www.mssociety.org – 1-800-344-4867 – “Knowledge is power section”  for newly diagnosed MS sufferers

 

 

To our health!

Kellie

If you want to learn more about healthy living and green technologies, check out my products page at www.myvollara.com/kga

You can also follow me on twitter @kelliealderton or my FB page Waking Up From MS where I share insights and information for everyone dealing with MS.